Wednesday, December 19, 2012

chapter 2

When I woke up this morning I thought to myself; "I am so nervous."  I thought that maybe Dr Donaldson would give me bad news.  But my Mom reassured me that anything the Dr says will be good news because he wants to help me. 

This is us on the way.........
Getting ready this morning was a little crazy.   Mom was freakin' out because we were running late, I was nervous and the kids were tired from waking up so early.  Eventually we got on the road.  I seemed like it was a 12 hour drive.  Really it was only 2 hours.    When we got there we sat in the office for what seemed like a lifetime.  My Aunt Jen called while we were waiting and listened in on her and my Mom's phone conversation.  Eventually one of the Dr's came and examined me.  It was weird having a Dr that I didn't know examine my body.....I mean ALL of my body.  He asked lots of questions about how I was feeling and how school was going.  He asked about my food diet.  Finally, the other Dr came and examined me a little bit more with another assistant. Then I got to go get the rest of my family.  We were to the good part.  I was finally going to get all my questions answered.  (At least that's what I thought.)
My Mom told me that I would get a chance to ask all my questions but not to interrupt the Dr.  She forgot to give me that chance.  Before I knew it, they had decided on a course of action and I had no say at all.  That did not make me happy at all. 
We went to The Old Spaghetti Factory at Trolley Square after that. I love that restaurant because it is where we always go after Primary Children's Dr appointments.  They have delicious gluten free mac and cheese and spumoni ice cream.
We had planned a fun day with the family at Temple Square.  We started with the Joseph Smith Movie.  I loved it, it was cool.  Next, we went to the Beehive House where Brigham Young lived.  It is the oldest in Salt Lake, I think.  When had yummy hot chocolate while waiting for it to get dark enough to see all of the Christmas Lights. 

Just so you know this is my Mom and Gavin, my step dad's, anniversary.  They took there picture in this exact spot while they were on their honeymoon. 
Any who, the lights were beautiful.  Some of them looked like candy canes.  My favorite was the floating nativity on the water.
On the way home I talked to my Mom about being upset about not getting a chance to ask all of my questions to the Dr.  I was really upset because I didn't get a say in any treatment.  They chose everything for me.  I feel like I'm old enough to at least have a say in what treatment MY body is going to get.  I want more information on taking the thyroid out instead of killing it with iodine.  My parents agreed that I should have a say because it is my body.  They told me that I wouldn't be forced into anything that I wasn't comfortable with.  But that I couldn't do anything that they weren't comfortable with. We will all decide together.  I understand that this will have an effect on my whole family not just me.  The good news about the radio iodine is that I don't have to be isolated for a whole week, just 1 to 2 days and out of school for a week instead of a month.
 
I had a fantastic surprise when I got home. 
 
 All my neighborhood friends decorated my room while I was gone with balloons and notes.  It made me feel so shocked and loved.  I didn't think anyone cared that much.  I feel like it is Christmas early and in blue.  Blue is the color of Graves disease, if you couldn't tell. 
I guess my family has some deciding to do, but I'm feeling pretty optimistic right now.  I haven't felt this good in a while.............but I still hate taking all the stupid meds. 
Good night.

2 comments:

  1. Kiley, so glad you finally got to see the doctor. Hopefully at least some questions were answered. It is great news that you don't have to be isolated as long if you decide on that course of treatment. Talking a bunch of meds is no fun. I know that. Especially where some of yours are so big. We want you feeling better and to be healthy. Lots of people care about you. Even people you may not know very well. Thank you for sharing you personal life with us. [Hugs]

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  2. I am so glad you are blogging, Kiley. I'm glad your news was relatively good. Keep smiling! We love you to pieces!!!

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