chapter 1

I am a ten year old girl who lives with celiac disease, graves disease and hashimotos disease.  I have been living like this for almost two years.  While at a routine (at least routine for me) Dr apt a few weeks ago I had some not so great news.  My Mom and Step Dad, Gavin, tried not to tell me something but I didn't know what.  I was scared because I don't know what the Dr at Primary Children's was going to say and I didn't know what was going to happen when we went down there.  They sat by my bed one night and explained that there were a couple of different options.  One: I could have my thyroid taken out and have to stay in the hospital for a few days and have to miss school.  I kind of felt like missing school would be fun.  The second option is having to take a different medicine and not be able to see my brother and sister for a few days but still get to miss school.  When they told me what the Dr might say I still felt scared but a little better.  I understand that I am sick but not, I have a cold sick, but more like I have a lifelong disease sick.  I don't like taking so many pills.  I have to take 3 in the morning 1 in the afternoon and 3 and 1/2 every night.  My Mom comes to school everyday to take my pulse because the Dr doesn't want it to get too high or too low.  I am getting used to this new routine and I don't mind it as much as I used to.  I'm also on the Gators swim team.  Sometimes I have to stop and rest during practice and catch my breath.  Swimming really works my body hard and it's starting to wear on me.  I'm tired a lot.  I have to take sleeping medicine and I hate it.  I sometimes don't take it on purpose because I feel like I should be able to do it on my own.  I didn't take it last night and I'm exhausted today.  My cousins are here and I don't really want to get up off the couch to play.  Sometimes I cry because this is too hard and sometimes I laugh because I'm tired of crying.  My mom suggested this blog.  I think it will help because I can get other peoples opinions on how I can help myself get through these hard times.  Maybe I'll cry less if I write how I feel instead of bottle it up inside.  I don't think other people understand how hard it is to know I have a rare combination of diseases for a 10 year old girl.  There is a girl in my class that thinks that my food is different and doesn't mean to but is rude to me about it.  She says, "no offense, but your food looks weird."  Things like that hurt my feelings because it's hard being teased because your different.  I've learned that sometimes I'm rude to other people and not realizing it.  I'm trying to do better at that.  I am looking forward to seeing my Dr on Wednesday because I will know for sure what is going to happen.  Sometimes I'm just scared because I don't know what is coming next.  My friends try to comfort me when I'm scared and sad by talking to me in a nice way.  They remind me that they care about me.  I've had someone bring some nice little notes and presents that bring me joy and happiness.  The first one was a little box of gluten free cookies with a note that reassured me that Heavenly Father is here for me.  The second one was a little box with a note and a ring that says, "I am a child of God".  The last one I got today was a book called, "You Are Special" and it said that everyone is special and it doesn't matter what other people think only what we think and what Our Maker thinks.  My mom helped me with the typing today, but I plan on doing it myself next time.  I think I'm going to like blogging.  I already feel a little better.  I'm hungry and tired.  GTG

Thanks for reading diary of a sick kid chapter 1.