chapter 5

chapter 5: got a cast!!!!!!



So, I got a cast today and it is pink sparkles!!!  It is a little hard to type, but I am doing it. It has a big mustache on it so I can put it up to my mouth and it looks like I have a gigantic mustache that people can sign in.  Soooooooooooooooo cool!!!!!!!  Makes me look like the Lorax, huh?

 

 

Here is a collage of pictures from when I was getting the cast put on.

 

 

My friend is coming over and we are going to party all night.......or until I fall asleep! 

 

HAPPY NEW YEARS!!!!!!!!!

chapter 4: broken arm

Merry Christmas!!!

 

Or maybe I should say Crappy Christmas.

I broke my arm sledding (on my feet) down the driveway. 

Very painful, Lesson learned.

 

 

Actually, I wouldn't say Crappy Christmas, just crappy Christmas morning.  Thankfully, the Dr. took good care of me in the ER and I'm back home blogging about it.  It could have been much worse. 

Like:  I could have been stranded in the middle of the desert with no water, food or medical help.  I could be starving, without my medicine and be dying of thirst.

THAT would be worse.

 

 

What did the big man bring you all for Christmas?  In a mean twist of the cosmic universe that I have spoken of previously, got me nothing but swim gear, which, is what I really wanted and loved.  Right up until I broke my arm and rendered it useless for 6 to 8 weeks.  That sucked!

 

Nonetheless, I do love Christmas.  I love spending time with my family, even if it is in the ER.  I love Christmas songs and making up funny twists to the lyrics.  For example,

 

Dashing through the house,

'cause I can't find my left boot

Got to head outside,

this one will be a bute!

The powder's two feet deep,

Whole front lawn is white

We'll stomp and we'll attack

and we won't come back 'til midnight.

Snowball fight

Snowball fight

Join us if you dare.

We'll make sure a clump of snow

lands in you underwear

oh...

Snowball fight

Snowball fight

Favorite winter sport.

We'll pelt until it melts,

and we'll never leave our fort.

 

 

I can't take credit for that, it came from one of our families favorite song books, "Where did they hide my presents?" by Alan Katz and David Catrow. But, I do love it.

 

My family went sledding and I'm stuck in bed with this computer, my Mom and a book.  Once again, I say, "LESSON LEARNED"

 

One more quick thing.  I need to apologize for the last post about my emails being ignored.  My Grandpa Jensen didn't get them because he was sick in the hospital.  Sorry Grandpa, I hope you feel better soon! 

 

 



chapter 3

I want to blog...............but nothing is coming to my mind.  Actually, the real problem is, there is too much coming to my mind so I don't know where to start. 

 

I'm tired right now because I just finished crying.  I was crying because I have been talking about my treatment.  I am so frustrated.  The cosmic universe apparently doesn't care what I want.  What I want is to be magically perfect.  My mom says that everybody wants that, sick or not sick.  That's God's big joke on us.  To make it through this life so perfectly imperfect. 

 

I got a letter from my Aunt Jen yesterday.  It rocked.  She gave me finger mustache tattoo's.  She also gave me a sticker that says "Love Pirate"  I asked if I could get a real tattoo of it on my back.  My Mom said, "no way, Missy."  What a lame-o.  Now I want to shave my head like Aunt Jen did when she was younger.  Mom said she would think about it and maybe even do it with me.  She's the best. 

 

I think my life sucks right now.  I have to make too choose from two crap-hole options.  I guess I'm choosing "milkshake".  AKA: radio-iodine.  (I will most likely have to drink it, that's why we call it a milkshake, it just sounds better.)  My mom promised we would find lots of fun things to do for two days of alone time.  I'm mostly hoping for a TV and computer in my room.  I think if I play my cards right, I might get my Mom to shave her head.  That would be awesome.  Who's with me!?!  Aunt Jen shaved her head because she going to State with her high school swim team.  I'm hoping some day I will make it to state, too. 

 

I am also upset because, I invited my Grandma Jensen, Grandpa Jensen and Aaron Dad to Christmas Eve and they haven't emailed me back an answer.  Hello, tomorrow is Christmas Eve.  How rude!!  I wish that I could snap my fingers and make them do what I want.  I did, however, get a gift card from my Great Grandma Jensen.  That was super nice. 

 

I didn't take my medicine this afternoon, so I am crazy tired.   I wish my body would just work already.  All these stupid pills are starting to get on my nerves.  I hate them, I hate them, I hate them, I hate them!! Oh yeah, did I mention that I HATE THEM?

 

Looking forward to Christmas and loving the break from school.  I plan on skiing, sharing the Christmas spirit, watching lots of Christmas movies and NOT doing homework.  Sorry, Mr. Haramoto.   

 

Thank you to all of my friends and family for their love and support.  You are making this the best Christmas ever, even though my body feels likes it's the worst.  My mind is on strike from my body.  Why do I feel like I need a Twinkie?  ha, ha. 

 

Merry Christmas!!!



chapter 2

When I woke up this morning I thought to myself; "I am so nervous."  I thought that maybe Dr Donaldson would give me bad news.  But my Mom reassured me that anything the Dr says will be good news because he wants to help me. 



This is us on the way.........

Getting ready this morning was a little crazy.   Mom was freakin' out because we were running late, I was nervous and the kids were tired from waking up so early.  Eventually we got on the road.  I seemed like it was a 12 hour drive.  Really it was only 2 hours.    When we got there we sat in the office for what seemed like a lifetime.  My Aunt Jen called while we were waiting and listened in on her and my Mom's phone conversation.  Eventually one of the Dr's came and examined me.  It was weird having a Dr that I didn't know examine my body.....I mean ALL of my body.  He asked lots of questions about how I was feeling and how school was going.  He asked about my food diet.  Finally, the other Dr came and examined me a little bit more with another assistant. Then I got to go get the rest of my family.  We were to the good part.  I was finally going to get all my questions answered.  (At least that's what I thought.)

My Mom told me that I would get a chance to ask all my questions but not to interrupt the Dr.  She forgot to give me that chance.  Before I knew it, they had decided on a course of action and I had no say at all.  That did not make me happy at all. 

We went to The Old Spaghetti Factory at Trolley Square after that. I love that restaurant because it is where we always go after Primary Children's Dr appointments.  They have delicious gluten free mac and cheese and spumoni ice cream.

We had planned a fun day with the family at Temple Square.  We started with the Joseph Smith Movie.  I loved it, it was cool.  Next, we went to the Beehive House where Brigham Young lived.  It is the oldest in Salt Lake, I think.  When had yummy hot chocolate while waiting for it to get dark enough to see all of the Christmas Lights. 



Just so you know this is my Mom and Gavin, my step dad's, anniversary.  They took there picture in this exact spot while they were on their honeymoon. 

Any who, the lights were beautiful.  Some of them looked like candy canes.  My favorite was the floating nativity on the water.

On the way home I talked to my Mom about being upset about not getting a chance to ask all of my questions to the Dr.  I was really upset because I didn't get a say in any treatment.  They chose everything for me.  I feel like I'm old enough to at least have a say in what treatment MY body is going to get.  I want more information on taking the thyroid out instead of killing it with iodine.  My parents agreed that I should have a say because it is my body.  They told me that I wouldn't be forced into anything that I wasn't comfortable with.  But that I couldn't do anything that they weren't comfortable with. We will all decide together.  I understand that this will have an effect on my whole family not just me.  The good news about the radio iodine is that I don't have to be isolated for a whole week, just 1 to 2 days and out of school for a week instead of a month.

 

I had a fantastic surprise when I got home. 

 

 All my neighborhood friends decorated my room while I was gone with balloons and notes.  It made me feel so shocked and loved.  I didn't think anyone cared that much.  I feel like it is Christmas early and in blue.  Blue is the color of Graves disease, if you couldn't tell. 

I guess my family has some deciding to do, but I'm feeling pretty optimistic right now.  I haven't felt this good in a while.............but I still hate taking all the stupid meds. 

Good night.

chapter 1

I am a ten year old girl who lives with celiac disease, graves disease and hashimotos disease.  I have been living like this for almost two years.  While at a routine (at least routine for me) Dr apt a few weeks ago I had some not so great news.  My Mom and Step Dad, Gavin, tried not to tell me something but I didn't know what.  I was scared because I don't know what the Dr at Primary Children's was going to say and I didn't know what was going to happen when we went down there.  They sat by my bed one night and explained that there were a couple of different options.  One: I could have my thyroid taken out and have to stay in the hospital for a few days and have to miss school.  I kind of felt like missing school would be fun.  The second option is having to take a different medicine and not be able to see my brother and sister for a few days but still get to miss school.  When they told me what the Dr might say I still felt scared but a little better.  I understand that I am sick but not, I have a cold sick, but more like I have a lifelong disease sick.  I don't like taking so many pills.  I have to take 3 in the morning 1 in the afternoon and 3 and 1/2 every night.  My Mom comes to school everyday to take my pulse because the Dr doesn't want it to get too high or too low.  I am getting used to this new routine and I don't mind it as much as I used to.  I'm also on the Gators swim team.  Sometimes I have to stop and rest during practice and catch my breath.  Swimming really works my body hard and it's starting to wear on me.  I'm tired a lot.  I have to take sleeping medicine and I hate it.  I sometimes don't take it on purpose because I feel like I should be able to do it on my own.  I didn't take it last night and I'm exhausted today.  My cousins are here and I don't really want to get up off the couch to play.  Sometimes I cry because this is too hard and sometimes I laugh because I'm tired of crying.  My mom suggested this blog.  I think it will help because I can get other peoples opinions on how I can help myself get through these hard times.  Maybe I'll cry less if I write how I feel instead of bottle it up inside.  I don't think other people understand how hard it is to know I have a rare combination of diseases for a 10 year old girl.  There is a girl in my class that thinks that my food is different and doesn't mean to but is rude to me about it.  She says, "no offense, but your food looks weird."  Things like that hurt my feelings because it's hard being teased because your different.  I've learned that sometimes I'm rude to other people and not realizing it.  I'm trying to do better at that.  I am looking forward to seeing my Dr on Wednesday because I will know for sure what is going to happen.  Sometimes I'm just scared because I don't know what is coming next.  My friends try to comfort me when I'm scared and sad by talking to me in a nice way.  They remind me that they care about me.  I've had someone bring some nice little notes and presents that bring me joy and happiness.  The first one was a little box of gluten free cookies with a note that reassured me that Heavenly Father is here for me.  The second one was a little box with a note and a ring that says, "I am a child of God".  The last one I got today was a book called, "You Are Special" and it said that everyone is special and it doesn't matter what other people think only what we think and what Our Maker thinks.  My mom helped me with the typing today, but I plan on doing it myself next time.  I think I'm going to like blogging.  I already feel a little better.  I'm hungry and tired.  GTG

Thanks for reading diary of a sick kid chapter 1.

Kindness Matters:

Today marks the first day of my online blog about how I feel, deal and heal!!!!